Comments for House of Krause http://jenkrause.com/blog by Jen Mon, 06 Feb 2012 20:31:22 +0000 http://wordpress.org/?v=abc Comment on YOU ARE NOT ALONE by Rick http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2165 Rick Fri, 03 Feb 2012 02:17:36 +0000 http://jenkrause.com/blog/?p=2108#comment-2165 Reading over some of the replies, this particular email, and your blog, I can't help but cry myself. My son is two and a half, and has exhibited everything described in this post. He's been evaluated numerous times, and they just keep saying that he'll outgrow it. He hasn't outgrown it. Ironically, he used to be able to say daddy, doggie, and ducky, and gradually stopped. He can't make certain facial expressions (can't close his lips to kiss or drink through a straw). When he sees something exciting, like a bus, truck, or train, he screeches his approval. He knows all of two signs, please and hungry, and the rest of the time we get by on nonverbal communication. We finally got a referral to a local clinic that specializes in autism and other delays, and had him evaluated. We get the results of the evaluation next week. We're convinced CAS is his diagnosis, as his symptoms are identical. I can't help but cry, because he's perfect in every way except for his speech. It hurts to see him hurt, because he's trying desperately to communicate, and he can't. Thanks for the posts; I know I'm not alone, it's just hard to cope with right now. I find myself wondering if he'll ever talk, and all I can do right now is hold out hope. Reading over some of the replies, this particular email, and your blog, I can’t help but cry myself. My son is two and a half, and has exhibited everything described in this post. He’s been evaluated numerous times, and they just keep saying that he’ll outgrow it. He hasn’t outgrown it. Ironically, he used to be able to say daddy, doggie, and ducky, and gradually stopped. He can’t make certain facial expressions (can’t close his lips to kiss or drink through a straw). When he sees something exciting, like a bus, truck, or train, he screeches his approval. He knows all of two signs, please and hungry, and the rest of the time we get by on nonverbal communication. We finally got a referral to a local clinic that specializes in autism and other delays, and had him evaluated. We get the results of the evaluation next week. We’re convinced CAS is his diagnosis, as his symptoms are identical. I can’t help but cry, because he’s perfect in every way except for his speech. It hurts to see him hurt, because he’s trying desperately to communicate, and he can’t. Thanks for the posts; I know I’m not alone, it’s just hard to cope with right now. I find myself wondering if he’ll ever talk, and all I can do right now is hold out hope.

]]> Comment on YOU ARE NOT ALONE by Becky http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2155 Becky Wed, 04 Jan 2012 15:20:02 +0000 http://jenkrause.com/blog/?p=2108#comment-2155 Oh my gosh. I read this post and bawled. This was SO my son and my feelings as well. My son could NOT get the hang of breastfeeding. He lost so much weight that we needed to treat my 8#13oz baby as a preemie for the entire 1st year of his life. He was so gaggy that he would throw up at the slightest discomfort (a burp bubble? throw up. a non-pureed food? throw up). I had sucessfully nursed (and tandem nursed and was a La Leche League avid supporter!) 3 children before him, but all I could do for this child was pump and supplement with high calorie formula (I had never used the stuff...had to read the directions even!) I felt SO much guilt. Like I was doing something to cause his delays. I have 2 great nephews that were born within months of my son's birth. I know you shouldn't compare, but how couldn't I? My oldest child (also a boy), was an early talker (saying "Mama" at 5 months, full sentences at a year), so people would tell me that it was just because he was a boy and I knew better. The looks people would give when they would say something to him and he wouldn't respond or sometimes even make eye contact. I dreaded leaving the house. I didn't want to have to explain to people that he couldn't talk yet. That he wasn't eating "regular" table food until 15 months. Going to his well checks at the doctor put me into a crying jag that I couldn't seem to get out of. At 20 months he started speech therapy through the local Birth to 3 program (where they were either leaning toward Autism or Apraxia). In that time (7 months now), he has picked up quite a bit of communication. It's unbelievable. I am in a different place now, too. I don't feel like I need to apologize for his difficulty in communication, but I help people to understand. We celebrate his successes. He has learned quite a few signs and still has pop out words that make us laugh ("crocodile" is my favorite). The day he started saying "Mama" is one I will never forget...nor is the day that he took me by the hand and pulled me to the patio door because he wanted to play outside. I have realized that communication does not always have to be verbal and when we stopped focusing on that, it takes the pressure off of his brain and he tends to say things with less difficulty. The biggest thing I feel is alone. I don't personally know anyone else who has a child with Apraxia. Today I decided to google for blogs...I'm sure glad I did! Oh, and though we had a rough start with his feeding/weight...my son is now 27 months, in a 4t, 40" tall and weighs 36 lbs. Celebrating! :) Oh my gosh. I read this post and bawled. This was SO my son and my feelings as well. My son could NOT get the hang of breastfeeding. He lost so much weight that we needed to treat my 8#13oz baby as a preemie for the entire 1st year of his life. He was so gaggy that he would throw up at the slightest discomfort (a burp bubble? throw up. a non-pureed food? throw up). I had sucessfully nursed (and tandem nursed and was a La Leche League avid supporter!) 3 children before him, but all I could do for this child was pump and supplement with high calorie formula (I had never used the stuff…had to read the directions even!) I felt SO much guilt. Like I was doing something to cause his delays. I have 2 great nephews that were born within months of my son’s birth. I know you shouldn’t compare, but how couldn’t I? My oldest child (also a boy), was an early talker (saying “Mama” at 5 months, full sentences at a year), so people would tell me that it was just because he was a boy and I knew better. The looks people would give when they would say something to him and he wouldn’t respond or sometimes even make eye contact. I dreaded leaving the house. I didn’t want to have to explain to people that he couldn’t talk yet. That he wasn’t eating “regular” table food until 15 months. Going to his well checks at the doctor put me into a crying jag that I couldn’t seem to get out of. At 20 months he started speech therapy through the local Birth to 3 program (where they were either leaning toward Autism or Apraxia). In that time (7 months now), he has picked up quite a bit of communication. It’s unbelievable. I am in a different place now, too. I don’t feel like I need to apologize for his difficulty in communication, but I help people to understand. We celebrate his successes. He has learned quite a few signs and still has pop out words that make us laugh (”crocodile” is my favorite). The day he started saying “Mama” is one I will never forget…nor is the day that he took me by the hand and pulled me to the patio door because he wanted to play outside. I have realized that communication does not always have to be verbal and when we stopped focusing on that, it takes the pressure off of his brain and he tends to say things with less difficulty. The biggest thing I feel is alone. I don’t personally know anyone else who has a child with Apraxia. Today I decided to google for blogs…I’m sure glad I did! Oh, and though we had a rough start with his feeding/weight…my son is now 27 months, in a 4t, 40″ tall and weighs 36 lbs. Celebrating! :)

]]> Comment on Happy Birthday Handsome! by Grandma http://jenkrause.com/blog/2011/09/happy-birthday-handsome/#comment-2137 Grandma Thu, 29 Sep 2011 06:12:26 +0000 http://jenkrause.com/blog/?p=2176#comment-2137 Happy Birthday to Grandma's big boy! Love you lots, Grandma Happy Birthday to Grandma’s big boy! Love you lots, Grandma

]]> Comment on YOU ARE NOT ALONE by Suzanne http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2132 Suzanne Fri, 16 Sep 2011 05:24:38 +0000 http://jenkrause.com/blog/?p=2108#comment-2132 This is my son. Definitely. We got him evaluated in April and by May I was hearing apraxia. He still only says a few words. It is definitely nice to know that you are not alone. This is my son. Definitely. We got him evaluated in April and by May I was hearing apraxia. He still only says a few words. It is definitely nice to know that you are not alone.

]]> Comment on YOU ARE NOT ALONE by Jenny http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2130 Jenny Thu, 15 Sep 2011 18:28:44 +0000 http://jenkrause.com/blog/?p=2108#comment-2130 Thank you so much for sharing - I'm at the same point in my journey and am experiencing the same feelings and frustrations. So glad I found your blog. Thank you so much for sharing - I’m at the same point in my journey and am experiencing the same feelings and frustrations. So glad I found your blog.

]]> Comment on IEP by aunt paula and uncle bob http://jenkrause.com/blog/2011/04/special-yes/#comment-2127 aunt paula and uncle bob Mon, 12 Sep 2011 01:54:53 +0000 http://jenkrause.com/blog/?p=2066#comment-2127 Hi Jen, What a compassionate, informative message of support. Beautifully organized and written. Specific, practical suggestions and information. Think of all the parents who have prayed for this type of encouragement. Think of all the children who will benefit. What a gift. Love, Uncle Bob Hi Jen,

What a compassionate, informative message of support. Beautifully organized and written. Specific, practical suggestions and information. Think of all the parents who have prayed for this type of encouragement. Think of all the children who will benefit.
What a gift.
Love, Uncle Bob

]]> Comment on YOU ARE NOT ALONE by Jacqui http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2121 Jacqui Wed, 31 Aug 2011 03:40:16 +0000 http://jenkrause.com/blog/?p=2108#comment-2121 Thanks for sharing Jen, and please to the writer of this "epic email," I read the whole thing, and it made me remember how I felt when I was at that point with my son. I felt every little emotion that you described. My best advice to you is that you aren't alone, others have braved this road before you, you will have difficult days, but you will also have some of the greatest accomplishments and feelings of pride you will ever experience. Yes, my child has apraxia, and yes, it can be a challenging road, but I can say with 100% certainty that I wouldn't change a thing. I have learned so much, met so many wonderful people, and my son is going to be OK. I learned how to not take things for granted, to rejoice in achievements because he had to work for them, I learned about perseverance, and I learned that my child is absolutely perfect in every little way....apraxia or not. Your child is perfect too. (And so is Luke!!!). All the best to you and your son! Thanks for sharing Jen, and please to the writer of this “epic email,” I read the whole thing, and it made me remember how I felt when I was at that point with my son. I felt every little emotion that you described. My best advice to you is that you aren’t alone, others have braved this road before you, you will have difficult days, but you will also have some of the greatest accomplishments and feelings of pride you will ever experience. Yes, my child has apraxia, and yes, it can be a challenging road, but I can say with 100% certainty that I wouldn’t change a thing. I have learned so much, met so many wonderful people, and my son is going to be OK. I learned how to not take things for granted, to rejoice in achievements because he had to work for them, I learned about perseverance, and I learned that my child is absolutely perfect in every little way….apraxia or not. Your child is perfect too. (And so is Luke!!!). All the best to you and your son!

]]> Comment on 3LW’s by Grandma http://jenkrause.com/blog/2011/08/3lws/#comment-2120 Grandma Wed, 17 Aug 2011 07:26:35 +0000 http://jenkrause.com/blog/?p=2115#comment-2120 Wow Grandmas getting a new card! Wow Grandmas getting a new card!

]]> Comment on 3LW’s by Samantha http://jenkrause.com/blog/2011/08/3lws/#comment-2116 Samantha Sat, 13 Aug 2011 14:49:54 +0000 http://jenkrause.com/blog/?p=2115#comment-2116 Move those mountains Luke!!! So awesome! Move those mountains Luke!!! So awesome!

]]> Comment on Why Does It Matter? by Heather http://jenkrause.com/blog/2009/05/why-does-it-matter/#comment-2113 Heather Sun, 31 Jul 2011 22:30:16 +0000 http://jenkrause.com/blog/?p=706#comment-2113 thank you for your website. Im not sure where I first heard this diagnosis. I believe on a blog? I started researching it today and this sounds exactly like my child. The docs are also currently trying to diagnosis him as autistic and I agree that doesn't fit. I plan to start the process of looking at this new diagnosis tomorrow. Again thank you and good luck with your delightful children :) thank you Heather thank you for your website. Im not sure where I first heard this diagnosis. I believe on a blog? I started researching it today and this sounds exactly like my child. The docs are also currently trying to diagnosis him as autistic and I agree that doesn’t fit. I plan to start the process of looking at this new diagnosis tomorrow. Again thank you and good luck with your delightful children :)
thank you
Heather

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